The Palliative Care Handbook guidelines for clinical management and symptom control. 8TH EDITION | Rod MacLeod, Jane Vella-Brincat, Sandy. The ideas and opinions expressed in the Palliative Care booklet do not necessarily understand how palliative care can improve quality of life throughout. Objective: To understand spirituality from the point of view of nurses who care for patients under palliative care. Methods: This is a qualitative field study.
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The Cancer Control Palliative Care module was produced under the direction of (homeranking.info, accessed Hospice and Palliative Care Association of South Africa, KwaZulu Natal, South Africa. Dr Henry Available via homeranking.info . According to WHO and Worldwide Palliative care Alliance (WPCA) publication, Global Atlas of Palliative Care at the End of Life, only 1 in
Medicare Payment Advisory Commission. J Palliat Med ;9: Relatives perceived quality of palliative care: Morrison RS, et al. Kars, Lotty Hooft, Johannes J. Specialty palliative care is still limited, especially in the outpatient setting, and will likely remain strained for the foreseeable future.
Veldhoven, C. Verhagen, K. Vissers and Y. The transition from life-prolonging to palliative care PC can be challenging often characterized by psychical, physiological, social and existential changes. Knowledge of how to support the patient and famil Advance care planning ACP aids can help prepare patients, family members, and physicians for in-the-moment medical decision-making.
We wished to describe the content and approach of paper-based ACP aids in o John F.
Bridges, Thomas Lynch, Anne L. Schuster, Norah L. The demography of the world is changing as the population is ageing. Because of this change to a higher proportion of older people, the WHO has called for improved palliative care for older persons.
A large nu To investigate the value of a novel simulation-based palliative care educational intervention within an emergency medicine EM residency curriculum. Jessica M. Goldonowicz, Michael S.
Runyon and Mark J. Advances in medicine have helped many to live longer lives and to be able to meet health challenges. However death rates are anticipated to increase given the ageing population and chronic disease progression A desire to die DD is frequent in palliative care PC. However, uncertainty remains as to the appropriate therapeutic response. Proactive discussion of DD is not usually part of standard care.
To support Over the last decade, paediatric palliative care teams PPCTs have been introduced to support children with life-limiting diseases and their families and to ensure continuity, coordination and quality of paed Lisa M.
Kars, Sasja A. Schepers, Antoinette Y. Schouten-van Meeteren, Martha A. Grootenhuis and Johannes J. The Scottish Government set out its 5-year vision to improve palliative care in its Strategic Framework for Action — This includes a commitment to strengthening research and evidence based knowledge e Anne M.
Spiller and Scott A. With improvement in hospice palliative care services and long-term care, Republic of Korea hereafter South Korea has recorded significant changes in places of death e. Complex need for patients with a terminal illness distinguishes those who would benefit from specialist palliative care from those who could be cared for by non-specialists.
However, the nature of this complex Murray, Juliet Spiller and Anne Finucane. The evaluation of the effectiveness of undergraduate palliative care education UPCE programs is an essential foundation to providing high-quality UPCE programs. Therefore, the implementation of valid evaluat One ambition regarding palliative care is that it should be more accessible to patients and families regardless of care setting.
Previous studies show many difficulties and shortcomings in the care of patients Major obstacles exist in the care of patients at the end of life: Three possible nursing roles in care decision-making w However, despite recent policy attention to the provision of paediatr Johanna Taylor and Jan Aldridge.
Our objective was to investigate self-confidence and knowledge of German ICU physicians related to palliative car Kochs, Gerhard Schneider, Klaus J. Wagner and Christian M.
Although advance care planning ACP is fairly well understood, significant barriers to patient participation remain. As a result, tools to assess patient behaviour are required.
The objective of this study wa Aliya Kassam, Maureen L. Measuring the care experience at end-of-life EOL to inform quality improvement is a priority in many countries. The Taiwanese government has promoted palliative care consultation services PCCS to support terminally ill patients in acute ward settings to receive palliative care since Such an intervention can enha Inpatient, generalist social workers in discharge planning roles work alongside specialist palliative care social workers to care for patients, often resulting in two social workers being concurrently involved Advance care planning is a process of discussion that enables competent adults to express their wishes about end-of-life care through periods of decisional incapacity.
Although a number of studies have documen Chong-Wen Wang, Cecilia L. Chan and Amy Y. This study aimed to examine the status of undergraduate palliative care education among Japanese medical students using data from a survey conducted in The purpose of this study was to compare the differences across occupational groups related to their end-of-life care-specific educational needs and reported intensity of interprofessional collaboration in lon Kaasalainen, T.
Sussman, M. Bui, N. Akhtar-Danesh, R. Laporte, L. McCleary, A. Wickson Griffiths, K. Brazil, D. Parker, V. Dal Bello-Haas, A. Papaioannou and J.
When entering the dying phase, the nature of physical, psychosocial and spiritual care needs of people with dementia and their families may change.
Our objective was to understand what needs to be in place to Jenny T. Gijsberts, Laura H. Vermeulen, Margje M. Mahler and B. Anne-Mei The. Khan, Rachel Burman and Jonathan Koffman. Education in palliative medicine PM at medical schools reveals wide variation despite the increasing importance of palliative care.
Many universities present poor description of the benefits and detailed con Juho T. Over the past decades there has been a significant increase in the number of published clinical trials in palliative care. However, empirical evidence suggests that there are methodological problems in the des Cachexia is defined as the on-going loss of skeletal muscle mass that cannot be fully reversed by conventional nutritional support. Hueso-Montoro, E. Ojeda-Virto and M.
Citation Impact 2. Articles Sections Cancer palliative care Ethics, organization and policy Knowledge, education and training Palliative care in other conditions Psychosocial Collections Reviewer acknowledgements Knowledge, education and training This section considers submissions that focus on the development, outcomes or discussion of guidelines, developments and training programmes for improving knowledge and clinical practice in the palliative care of patients with far advanced disease.
Page 1 of 2. Towards appropriate information provision for and decision-making with patients with limited health literacy in hospital-based palliative care in Western countries: Recommendations on priorities for integrated palliative care: Multiple and multidimensional life transitions in the context of life-limiting health conditions: Cultural safety strategies for rural Indigenous palliative care: Hospice care education needs of nursing home staff in South Korea: What do patients and family-caregivers value from hospice care?
A systematic mixed studies review It is not known which attributes of care are valued the most by those who experience hospice services. A pattern language of compassion in intensive care and palliative care contexts Compassion has been identified as important for therapeutic relationships in clinical medicine however there have been few empirical studies looking at how compassion is expressed different contexts. Nevertheless, the age and sex profiles of the participating GPs were quite similar to the nationwide figures mean age of 51 vs.
Secondly, GPs may have selected patients with whom they had a good relationship and patients may have done the same in selecting home care nurses. Our results could therefore be too positive. Thirdly, patients may have felt obliged to respond positively when answering questions about their care that their GP had asked them to answer.
However, as patients filled in the questionnaires at home and sent them to the researchers, we think it is not very likely that this influenced the results. An alternative method could have been for instance, to select patients through internet fora, which possibly would have led to lower appreciation for the care received, as it is conceivable that patients with negative experiences are more active on these fora.
Another alternative inclusion method could have been via the treating specialist, yet, this route would have exclude patients who are no longer being treated by their oncologist, resulting in bias by disease stage. As we received questionnaires from most of these nurses, we can assume no selection took place of nurses who were particularly interested in palliative care or had a good relationship with the patient.
A validation study using a different sampling method would be interesting. The patients with advanced cancer in our study considered respect for autonomy as more important than a broader group of patients receiving palliative care 3. Patients in our study considered aspects of support when experiencing specific symptoms to be less important 2. This may be explained by findings of previous studies that cancer patients have more palliative care, palliative treatments, discussion of end-of-life topics and advance care planning than palliative patients without cancer [ 6 , 25 ].
Cancer patients may thus have fewer unmet needs as to support from professionals when experiencing symptoms. In line with the results of our study, previous studies found that most cancer patients had talked to their GPs about life expectancy, possible medical complications and the burden imposed by treatments [ 6 , 25 ].
GPs are generally better able to foresee imminent death in patients with cancer compared with patients with COPD or chronic heart conditions [ 26 ]. This is related to the fact that the disease trajectory is often less variable in cancer than in other chronic life-threatening disease [ 27 ], which may facilitate discussing prognosis [ 28 ].
This may explain why GPs are more likely to discuss the prognosis with cancer patients.
As to support when patients experience physical or psychological symptoms, other studies also reported a need for improvement [ 18 , 29 ], although it should be stressed that full control of common symptoms like fatigue, shortness of breath and pain may not always be possible. Our results indicate potential room for improvement in the support provided by GPs and home care nurses to patients experiencing symptoms, especially fatigue.
This could be done by giving more attention to possible symptoms, even if this means acknowledging that full symptom control may not be achievable, particularly in the final phase of the disease. Our results also indicate that it is important that information about the expected course of the illness is tailored to the individual preferences of a patient, as preferences may differ between patients and over time.
However, we acknowledge that providing information about the expected course of the illness may be difficult, as this course may not always be predictable. Besides, information provision should be broader than just information about the expected course of the disease. In conclusion, we found that most patients with advanced cancer receive the care that they consider important. Aspects that could possibly be improved are the support the GPs give when a patient experiences fatigue and discuss with patients whether they want to receive information about the expected course of the illness.
General practitioner. Consumer quality index. Chronic obstructive pulmonary disease. We would like to thank all patients, GPs and nurses for their participation and Clare Wilkinson for critically revising the English language. The study was funded by the Stichting Stoffels-Hornstra. They had no role in study design, data collection, analysis and interpretation of the data, decision to publish, or writing of the manuscript.
JH performed the data acquisition, MH performed the data analyses and drafted the manuscript. All authors gave final approval of the version to be published and agree to be accountable for all aspects of the work. The study was carried out according to the precepts of the Helsinki Declaration, Dutch legislation on privacy and the regulations of the Dutch Data Protection Authority.
Patients, GPs and home care nurses gave written informed consent before study participation. The study protocol was reviewed by the Medical Ethics Committee of the VU Medical Centre and they concluded that, according to Dutch legislation, approval by a Medical Ethics Committee was not obligatory for this study. Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations. Palliative care for patients with cancer: A survey study.
Abstract Background In many countries, GPs and home care nurses are involved in care for patients with advanced cancer.
Results Almost all patients rated information provision and respect for their autonomy as important. Conclusion For most patients with advanced cancer, the palliative care that they receive matches what they consider important. Palliative care Primary health care Home care services Neoplasms Quality of care.
However, in these studies information was often collected from relatives rather than directly from patients themselves, while other studies did not focus specifically on patients with advanced cancer. Given this lack of knowledge about the specific preferences and experiences of patients with advanced cancer, more insight is needed into their opinions about these subjects in order to optimise these aspects of palliative care.
Also, given the important role of GPs and home care nurses in palliative care, it could be helpful to have insight into the extent to which their perspective on respecting autonomy and information provision match with that of their patients with advanced cancer. We therefore formulated the following research questions for this study: Study design We applied a stepwise approach. Participants A total of 87 GPs participated in the study. Between June and January , we recruited 72 patients through the participating GPs.
Half of the patients were male and their mean age was Most were diagnosed with lung or colorectal cancer. Table 1 Background characteristics of patients. Mean importance scores were between 2. Mean importance scores ranged from 3.
Some patients who considered receiving support when experiencing a certain symptom to be at least somewhat important did not receive this support or only did so sometimes. Main findings Patients with advanced cancer as well as their GPs and home care nurses considered respect for autonomy and information provision to be very important and most patients did indeed receive these aspects of care.
Strengths and limitations A strength of our study is that we asked patients, their GPs and their home care nurses about their opinions and experiences regarding important aspects of palliative care. Implications Our results indicate potential room for improvement in the support provided by GPs and home care nurses to patients experiencing symptoms, especially fatigue.
General practitioner CQ Index: Consumer quality index COPD: Acknowledgements We would like to thank all patients, GPs and nurses for their participation and Clare Wilkinson for critically revising the English language. Funding The study was funded by the Stichting Stoffels-Hornstra. Ethics approval and consent to participate The study was carried out according to the precepts of the Helsinki Declaration, Dutch legislation on privacy and the regulations of the Dutch Data Protection Authority.
Competing interests The authors declare that they have no competing interests.
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